News
Happy Holidays from our team
Joint statement against the initiative to ban experiments on animals and humans
The federal popular initiative submitted in March 2019 calls for a ban on experiments on animals and humans and a ban on trade and approval of products developed using animal experiments. The Swiss Clinical Trial Organisation (SCTO), the Swiss Network of Paediatric Research Centres (SwissPedNet), the Swiss Group for Clinical Cancer Research (SAKK), and the Swiss…
Read MoreNew Executive Board elected
EUPATI CH is delighted to welcome the new and returning Executive Board members (all in a volunteer role). The result of the elections held on 23.04.2020 saw Ivo Schauwecker newly elected president, Hansruedi Völkle (vice president), Caecilia Schmid (Secretariat), and board members Rosmarie Pfau, Marie Mi Bonde Hansen, Cristiana Sessa, Annette Magnin, Larisa Aragon, Stephan…
Read MoreThe Swiss Patient Forum 2019
“The digital patient” – Are patients sufficiently competent in the increasing digitalisation in healthcare? Under what conditions are patients willing to cooperate and make use of the digitalisation? What hopes and fears are associated with this? What wishes and demands can be derived from this? At the third Swiss Patient Forum held on 25…
Read MoreEUPATI CH Flyers and Postcards
We are pleased to to share the new, web-friendly pdfs of our released EUPATI CH flyers with you. They are in four languages: English, French, German, and Italian. We also have Postcards 2018 in all four languages. Please use them as you see fit.
Read MoreNicole Gusset
Dr Nicole Gusset is founder and president of SMA Schweiz, an organisation aiming to recognise and encourage promising research approaches in spinal muscular atrophy (SMA) and bringing these therapies to the patients. SMA is a rare genetic neuromuscular disease characterised by muscle atrophy and weakness. Ever since her firstborn daughter, Victoria, was diagnosed in 2011…
Read MoreThe Swiss Patient Forum 2018
What is quality of life for patients? How do we define it, we who struggle with it? And what do we need to improve it, practically? At the Swiss Patient Forum held on 28 September 2018, EUPATI CH brought together a vibrant group of patients, representatives, and their caretakers to brainstorm these burning questions in…
Read MoreMalena Vetterli
Malena Vetterli, founder and president of FMF & AID Global Association: Familial Mediterranean Fever and Autoinflammatory Diseases, established in Zurich in 2017. The association has been elected into the European Reference Networks (ERN) Patient Advocacy Group, to actively represent patients. Malena is also a member of the Novartis Autoinflammatory Council and has been asked to…
Read MoreHansruedi Völkle
Dr Hansruedi Völkle (Positivrat), you will know him as our EUPATI CH President, but through this training, he is switching from being a teacher of students, to a student himself. Hansruedi originally studied physics and radiation protection, obtained his PhD, and became Professeur Titulaire at Fribourg University. He then worked for many years at the…
Read MoreEURORDIS Summer School 2018
EURORDIS Summer School 2018 (11 – 15 June 2018 in Barcelona) Patients are taking on ever increasing roles in advocating for medicines development, equal access to treatments across Europe and ensuring that medical information is clear, accurate and comprehensible. In order to help prepare them for these roles and as part of its commitment to empowering…
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